JCU study targets epilepsy
Adults with epilepsy and their partner or a relative are needed for a JCU study on the impact of the disorder on both them and their family.
The study is being conducted by Evangelina Ballini as part of a Master of Psychology (Clinical) degree and will focus on the emotional climate in a family home and the person with epilepsy’s perceived quality of life.
"It is important to have one family member as well as the person with epilepsy each complete a survey," Ms Ballini said.
"Family members need 20 minutes to answer questions about their feelings and how they relate to the person with epilepsy in their family.
"The survey for people with epilepsy is a little more involved as it asks about their perceived control over the disorder, sense of self-efficacy, self-rated emotional status and how they perceived their quality of life.
"This is National Psychology Week (November 9-15) and I believe this clinical research illustrates the services which psychologists can provide the community.
"We also provide support through the newly formed epilepsy support group which Epilepsy Queensland asked myself and Cairns Hospital nurse Neradeene Griffiths to start in Cairns.
"Considering the long waiting lists at the Cairns Hospital and the difficulty of managing the condition on a daily basis, there is a real need for support, not only for patients, but also their families.
"The first meeting is November 26, 4-6pm at FNQDocs, who have been most generous in providing a meeting room free of charge at their premises at 117 Anderson St, Manunda.
"The Cairns Epilepsy Support Group will give people touched by epilepsy the opportunity to talk to others with similar experiences and learn more about epilepsy.
"Epilepsy Queensland Client Services Coordinator Yvette McMurtrie will be at the first session to provide information and respond to questions."
The two surveys are online and anonymous.
The family survey for relatives/partners is at https://www.surveymonkey.com/s/FXF6YTY
People with epilepsy can access their survey at https://www.surveymonkey.com/s/FNYQLFJ
For further information contact Evangelina Ballini on (07) 4036 3082 or firstname.lastname@example.org